Articles & Books

Led by our President & CEO, Amye Leong, we offer these examples of books and articles we have written or spearheaded that may be helpful to you and your organization.


Leong, AmyeGet A Grip book image
Get a Grip: A Take Charge Approach to Arthritis
Jeremy Tarcher/Penguin Putnam Publisher: 2002
[Note: author's total proceeds benefit the Arthritis Foundation (USA) and the Bone and Joint Decade (outside USA)


Leong, Amye
¡Supérate! Testimonio de cómo abordar el problema de Vivir con Artritis
Grupo Aula Medica: 2004
[Get a Grip was published in Spanish by Grupa Aulo Medica and the Pfizer Foundation for free distribution to all patient advocacy groups in Spain to promote patient self-help and empowerment.]


Leong, Amye Complete Idiots Guide to Arthritis
The Complete Idiot's Guide to Arthritis
Alpha Books/Penguin Putnam Publisher: 2009.



(Noteworthy articles are marked by asterisks ***)

*** Leong, Amye. Euller-Ziegler, Liana. Patient Advocacy and Arthritis: Moving Forward, Bulletin of the World Health Organization. 2004 Feb; 82(2):115-20. E-pub 2004 Mar 16, 2004. PMID: 15042233.
[Today, this article remains a leading article on patient empowerment in arthritis around the world.]

*** Leong, Amye. Fact Sheet for Patients on Sex and Arthritis from the American College of Rheumatology, 2009.

Leong, A. Self-Help Movement Gets Help from Surgeon General, AIM-PLUS magazine: 1988.

Leong, A. Prime Time Arthritis, Arthritis Today magazine: 1992.

Katz, P, Yelin, E, Leong, A, et al. Health Insurance Characteristics and Health Care Evaluations Among Persons with Rheumatic Diseases in California. Arthritis & Rheumatism, December 1999, vol. 12, pp 2710-18. PMID: 10616022.

Leong, Amye. Bone and Joint Decade 2000-2010: An Opportunity for Action, National Lupus News, Winter 2002.

Leong, Amye. Patient Advisory Council: Experiential Knowledge plus Health Professional Expertise Equals Help for the Arthritis Community, The Patient's Network international magazine, International Alliance of Patient Organizations, London, 2002.

Quest, Enid, Leong, Amye, et al for the Patient Perspective Group. Patients' Perspective. J Rheumatol 2003 30(4):884-885. PMID: 12672222.

Tugwell, Peter, Leong, Amye. et al. Consumer Driven Health Care: Building Partnerships in Research, Health Expectations. 2005 Dec; 8(4): 352. PMID: 16266423

Leong, Amye. Challenging the Patience of Patients (invited editorial). British Medical Journal. 2005 July 9; 331(7508):107. PMID: 16002890.

Leong, Amye. Sex, Rheumatic Disorders and Aging: Not What You Think, invited guest editorial, Rheumatology News: September 2009.

Alten Rieke, Pohl Christoph, Choy Ernest, Christensen Robin, Furst Dan, Hewlett Sarah, Leong Amye, May James, Sanderson Tessa, Strand Vibeke, Woodworth Thasia, Bingham Clifton 3rd; OMERACT RA Flare Definition Working Group. Developing a construct to evaluate flares in rheumatoid arthritis: a conceptual report of the OMERACT RA Flare Definition Working Group. J Rheumatol. 2011 Aug;38(8):1745 50.

Bingham CO 3rd, Alten R, Bartlett SJ, Bykerk VP, Brooks PM, Choy E, Christensen R, Furst DE, Hewlett SE, Leong A, May JE, Montie P, Pohl C, Sanderson TC, Strand V, Woodworth TG; OMERACT RA Flare Definition Working Group. Identifying preliminary domains to detect and measure rheumatoid arthritis flares: report of the OMERACT 10 RA Flare Workshop. J Rheumatol. 2011 Aug;38(8):1751-8.

Rieke Alten, Ernest H Choy, Robin Christensen, Daniel E Furst, Sarah E Hewlett, Amye Leong, James E May, Tessa C Sanderson, Vibeke Strand, Thasia G Woodworth, Clifton O Bingham. Developing a Construct to Evaluate Flares in Rheumatoid Arthritis: A Conceptual Report of the OMERACT RA Flare Definition Working Group. The Journal of Rheumatology. 08/2011; 38(8):1745-1750.

Patient Turned Advocate Promotes Communication and Engagement in Clinical Trials: The Importance of Diversity in Clinical Trials. Medical Hero News, Issue 13, May 2012, Center for Information and Study on Clinical Research Participation.